Life-Cycle Decisions for Biomedical Data

The Challenge of Forecasting Costs

Éditeur: National Academies Press
ISBN: 9780309670036
eISBN Pdf: 9780309670043
eISBN Epub: 9780309670067
Lieu de publication: United States
Année de publication électronique: 2020
Mois : Septembre
Pages: 185
DDC: 507
Langue: Anglais

Légende

Biomedical research results in the collection and storage of increasingly large and complex data sets. Preserving those data so that they are discoverable, accessible, and interpretable accelerates scientific discovery and improves health outcomes, but requires that researchers, data curators, and data archivists consider the long-term disposition of data and the costs of preserving, archiving, and promoting access to them.

Life Cycle Decisions for Biomedical Data examines and assesses approaches and considerations for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data archivists, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.

Cover
Front Matter
Summary
1 Introduction
2 Framework Foundation: Data States and Associated Activities
3 Cost and the Value of Data
4 The Cost-Forecasting Framework: Identifying Cost Drivers in the Biomedical Data Life Cycle
5 Applying the Framework to a New State 2 Data Resource
6 Applying the Framework to a New Data Set
7 Potential Disruptors to Forecasting Costs
8 Fostering the Data Management Environment
Appendixes
Appendix A: Meetings and Presentations
Appendix B: Active Data Management Plans as a Planning Tool
Appendix C: Identifying Salary Ranges for Jobs Relevant to the Data Life Cycle
Appendix D: Soft Costs for Digital Preservation
Appendix E: Template to Map Cost Drivers to Data Resource Properties
Appendix F: Comparison of the Contents Across the Three Data States
Appendix G: Committee Biographical Information
Appendix H: Acronyms