Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research

Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research

Workshop Summary

  • Author: Berger, Adam C.; Olson, Steve
  • Publisher: National Academies Press
  • ISBN: 9780309159548
  • eISBN Pdf: 9780309159555
  • eISBN Epub: 9780309177139
  • Place of publication:  United States
  • Year of digital publication: 2010
  • Month: November
  • Pages: 85
  • Language: English

Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.

  • Cover
  • Front Matter
  • 1 Introduction
  • 2 Newborn Screening as a Public Health Program
  • 3 Uses of Residual Newborn Screening Samples in Research
  • 4 Concerns About the Use of Residual Newborn Screening Samples
  • 5 Review and Consent in the Use of Residual Newborn Screening Samples
  • 6 Parental and Public Education
  • 7 Workshop Overview and Wrap-Up
  • References
  • Appendix A: Workshop Agenda
  • Appendix B: Speaker Biographical Sketches

Subjects

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