Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research

Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research

Workshop Summary

  • Author: Berger, Adam C.; Olson, Steve
  • Publisher: National Academies Press
  • ISBN: 9780309159548
  • eISBN Pdf: 9780309159555
  • eISBN Epub: 9780309177139
  • Place of publication:  United States
  • Year of digital publication: 2010
  • Month: November
  • Pages: 85
  • Language: English

Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.

  • FrontMatter
  • Reviewers
  • Acknowledgments
  • Contents
  • Abbreviations and Acronyms
  • 1 Introduction
  • 2 Newborn Screening as a Public Health Program
  • 3 Uses of Residual Newborn Screening Samples in Research
  • 4 Concerns About the Use of Residual Newborn Screening Samples
  • 5 Review and Consent in the Use of Residual Newborn Screening Samples
  • 6 Parental and Public Education
  • 7 Workshop Overview and Wrap-Up
  • References
  • Appendix A: Workshop Agenda
  • Appendix B: Speaker Biographical Sketches

Subjects

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