Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.
- FrontMatter
- Reviewers
- Acknowledgments
- Contents
- Abbreviations and Acronyms
- 1 Introduction
- 2 Newborn Screening as a Public Health Program
- 3 Uses of Residual Newborn Screening Samples in Research
- 4 Concerns About the Use of Residual Newborn Screening Samples
- 5 Review and Consent in the Use of Residual Newborn Screening Samples
- 6 Parental and Public Education
- 7 Workshop Overview and Wrap-Up
- References
- Appendix A: Workshop Agenda
- Appendix B: Speaker Biographical Sketches