Ethics Rounds: A Casebook in Pediatric Bioethics

Ethics Rounds: A Casebook in Pediatric Bioethics

This collection is intended to be a starting point for a discussion on pediatric bioethics and a reference when reflecting on similar cases.

  • Introduction
  • End-of-Life Decisions
  • Introduction | End-of-Life Decisions
  • A Premature Infant With Necrotizing Enterocolitis Whose Parents Are Jehovah’s Witnesses
  • A Saudi Family Making End-of-Life Decisions in the PICU
  • Symbolic Resuscitation, Medical Futility, and Parental Rights
  • Palliative Sedation With Propofol for an Adolescent With a DNR Order
  • Parental Refusal of a Liver Transplant for a Child With Biliary Atresia
  • When Life-Sustaining Treatment Is Withdrawn and the Patient Doesn’t Die
  • Is Treatment Futile for an Extremely Premature Infant With Giant Omphalocele?
  • Cross-Cultural Differences in Communication About a Dying Child
  • Are We Allowed to Discontinue Medical Treatment in This Child?
  • Two Infants, Same Prognosis, Different Parental Preferences
  • Different Philosophies
  • Introduction | When Doctors and Parents Have Different Philosophies
  • A 6-Month-Old With Vaccine-Hesitant Parents
  • Should Pediatric Practices HavePolicies to Not Care for ChildrenWith Vaccine-Hesitant Parents?
  • When Parents Refuse a Septic Workup for a Newborn
  • Should All Deaf Children Learn Sign Language?
  • Should Neonatologists Give Opinions Withdrawing Life-sustaining Treatment?
  • Genomics
  • Introduction | Ethical Issues in Genomics
  • Genomic Contraindications for Heart Transplantation
  • Please Test My Child for a Cancer Gene, but Don’t Tell Her
  • Testing Children for Adult-Onset Genetic Diseases
  • Severe Disability
  • Introduction | Ethical Issues Surrounding Permanent Severe Disability in Childhood
  • Mechanical Ventilation for a Child With Quadriplegia
  • An Infant With Trisomy 18 and a Ventricular Septal Defect
  • A Baby With Meningococcemia and Septic Shock
  • Research Ethics
  • Introduction | Research Ethics
  • Should an IRB Approve a Placebo-Controlled Randomized Trial of Analgesia for Procedural Pain in Neonates?
  • When Is Waiver of Consent Appropriate in a Neonatal Clinical Trial?
  • Risks in a Trial of an Innovative Treatment of Duchenne Muscular Dystrophy
  • Randomized n-of-1 Trials: Quality Improvement, Research, or Both?
  • Law and Health Policy
  • Introduction | Issues in Law and Health Policy
  • Can a Patient Designate His Doctor as His Proxy Decision Maker?
  • Who Should Get the Last PICU Bed?
  • Was Sarah Murnaghan Treated Justly?
  • Should We Tell Parents When We’ve Made an Error?
  • When a Surgical Colleague Makes an Error
  • The Dilemma of Predicting Violent Radicalization



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