The teacher and gerontological social work scholar Mercedes Bern-Klug joins experts on nursing, law, medicine, sociology, and social work to provide a thorough understanding of nursing home palliative care. Their broad definition of palliative care treats comfort care as appropriate across the illness experience, not just at the end of life.
Because a majority of nursing home residents are older adults facing multiple, advanced chronic conditions, this book is grounded in the provision of palliative care-especially palliative psychosocial care. Yet its practice recommendations can also be applied to other long-term care settings, such as assisted living. The contributors combine scholarship with practical wisdom in each chapter, mixing reviews of scholarly literature with insights gleaned from clinical practice. Chapter topics comply with the eight domains of palliative care developed by the National Consensus Project for Quality Palliative Care. Some focus on care of the resident, while others concern the resident's family. A special section addresses self-care for nursing home staff members, and another discusses nursing home rituals to mark the death of a resident. Bern-Klug concludes with an overview of the factors that will shape the future of palliative care for advanced chronic illness.
- Contents
- Foreword: Looking Back on the Nursing Home Experience of My Mother -Msgr. Charles Fahey
- Foreword -Virginia Richardson
- Introduction -Mercedes Bern-Klug
- 1. The Need to Extend the Reach of Palliative Psychosocial Care to Nursing Home Residents with Advanced Chronic Illness -Mercedes Bern-Klug
- 2 The Structure and Process ofAdvanced Chronic Illness and Palliative Care in Nursing Homes -Sarah Thompson and Lisa Chur
- 3. Paying for Advanced Chronic Illness and Hospice Care in America’s Nursing Homes -Michael Klug
- 4. Trends in the Characteristics of Nursing Homes and Residents -Mercedes Bern-Klug
- 5. Anticipating and Managing Common Medical Challenges Encountered at the End of Life -Ann Allegre
- 6. Identifying and Addressing the Psychosocial, Social, Spiritual, and Existential Issues Affecting Nursing Home Residents at the End of Life -Jean C. Munn
- 7. Identifying and Addressing Family Members’ Psychosocial, Spiritual, and Existential Issues Related to Having a Loved One Living and Dying in a Nursing Home -Patricia J. Kolb
- 8. Identifying and Addressing Ethical Issues in Advanced Chronic Illness and at the End of Life -Charles E. Gessert and Don F. Reynolds
- 9. Final Discharge Planning: Rituals Related to the Death of a Nursing Home Resident -Peggy Sharr and Mercedes Bern-Klug
- 10. Grief, Self-Care, and Staff-Care: Repeated Loss in the Nursing Home Environment -Sara Sanders and Patti Anewalt
- 11. The Future of Palliative Psychosocial Carefor Nursing Home Residents with Advanced Chronic Illness -Mercedes Bern-Klug
- Appendix
- Contributors
- Index
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